Sorry for all the questions... I'm getting really nervous now and my stomach is churning at the thought 

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5848987 Wed, 16 May 2012 19:32:05 GMT http://supportaih.websitetoolbox.com/post?id=5847423 Hi all

Hope you are all well

Been for a check up today levels are all normal which is great. I can reduce the pred from 10 to 7.5 for 6 months which I am not impressed with, but my consultant wouldn't budge after the flare I had last year was so bad, I know he is only trying to keep me well but it means it will take 2 years to get of the pred as he said he will reduce by 2.5 every 6 months. I know it's not the end of the world but today it feels like it I am so sick of taking this bloody pills

Sorry better go, with luck tomorrow will be a better day

Dawn x

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5847423 Tue, 15 May 2012 19:25:23 GMT http://supportaih.websitetoolbox.com/post?id=5848712 Morning everyone

Has anyone got any thoughts on leaving college and applying for a job with AIH.  It is hard for employers to see this illness, will it go against you, should you tell them?  Another thought, at present on Higher level DLA, should circumstances change, how supportive are DLA on reducing to the lower level, ie: chronic illness.

Really in a pickle here as to the right advice for my daughter who is presently doing well and in college but doesn't know what to do next - college again - apprenticeship (if she can get one!!).

Cheers

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5848712 Tue, 15 May 2012 10:44:58 GMT http://supportaih.websitetoolbox.com/post?id=5846649 I have only been on the meds since feb 2012 so I dont know if these are having an affect But my 7 day period is over in 2 days Im Definatly not pregnant But wondered If anyone else has had an issue or knows If things could affect this thankyou in advance xxxxxxxx

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5846649 Tue, 15 May 2012 09:03:31 GMT http://supportaih.websitetoolbox.com/post?id=5845762 Hi everyone

I want to pick a few brains and get some opinions please.

I have been having bouts of diarhea for a few weeks now. Usually a couple of times a week and sometimes so bad that I have to take Immodium. When it is normal my digestive system still doesn't feel qiute right. Indigestion, colicy type pains and lots of flatulance both upper and lower ends. Frequently feel queasy too.

My bloods are all normal and everything else is fine. The one thing I am wondering though is, I started on Ibandronic acid 3 months ago and its the monthly tablet. I was wondering if this could be causing the digestive disruption.

Any suggestions or advice would be very welcome.

Thanks

Jenny

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5845762 Mon, 14 May 2012 18:54:14 GMT http://supportaih.websitetoolbox.com/post?id=5845068
One more question from me  - sorry.

My hubbie and I adopted our daughter a couple of years ago and long before any of this kicked off (well knowing about it anyway).  

We were about to start the adoption merry go round again just before we found out about this and currently have deferred until later in the year when we know whether the treatment is working or not.

My question is  - have any of you adopted a child/been considered for adoption with this condition?

thanks

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5845068 Mon, 14 May 2012 12:46:00 GMT http://supportaih.websitetoolbox.com/post?id=5845064
I've been on my steroids for about 6 weeks now and have my first Blood test/consultant review next week.  I'm anxious to see what effect the steroids have had especially as the dosage that I'm prescribed is quite low compare to some of you.  I started at 25MG pred. for 2 weeks and have been on 20mg for the past month. 

Anyway, my question is how quickly did you get on the azathioprine?  do the steroids have to be working first? 

Also, at my last appt, my consultant said at some point going forward I would need to have a endoscopy - but we'd worry about that later. I will ask him next week but can anyone tell me why I would need this?

Thanks

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5845064 Mon, 14 May 2012 12:42:53 GMT http://supportaih.websitetoolbox.com/post?id=5843658

Forum: Non AIH/PBC chat ]]> http://supportaih.websitetoolbox.com/post?id=5843658 Sun, 13 May 2012 08:41:48 GMT http://supportaih.websitetoolbox.com/post?id=5843191 Hi Guys, I am still quite new to this. Diagnosed on Oct 2011, and have been told by cons that I am "atypical", anyway started on 40mg Pred, quickly bloods got back to near normal and he quickly reduced my Pred down to 5mg (I had no idea that others struggle with such large reductions at that time!)then he introduced Aza in Jan, 50mg. I missed my appointment in March due to being sick (literally!) so went to see my GP, he told me my liver function was perfcet and he could not see any reason to increase the Aza (why would you take more of such a potentially dangerous drug?), so he said stay on 50mg and 5mg pred. Then got a letter from cons saying go up to 150mg Aza and that my bloods were good.

I feel caught in the middle, have done reading but feel divided - your veiws and advice would be very welcome.

Thanks guys

Ginger xx

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5843191 Sat, 12 May 2012 21:46:01 GMT http://supportaih.websitetoolbox.com/post?id=5839413
Looks like i will be making the switch to cellcept as my neurological issues are not subsiding. Tingling and pain in extremeties is worse and cant determine if it is the bud or aza, so consultant is switching me to cellcept. I will start on 2000 mgs a day. This seems really high based on what i am reading on old posts. Anyone else on this high a dose? Does this seem normal?

I wonder which will give me worse side effects. I am a bit worried again. I just wantto feel normal again.

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5839413 Thu, 10 May 2012 22:07:50 GMT http://supportaih.websitetoolbox.com/post?id=5839303

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5839303 Thu, 10 May 2012 20:45:40 GMT http://supportaih.websitetoolbox.com/post?id=5839296 Hey folks,

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5839296 Thu, 10 May 2012 20:42:48 GMT http://supportaih.websitetoolbox.com/post?id=5840347
I'm currently in hospital, I developed a tumour on my liver, turns out it's the long term use of azathioprine that has caused it. I'm on my second cycle of chemo and 2 more to go. I have a CT scan next Thursday. Fngers crossed the tumour has shrunk. I don't want to panic everyone, but if you don't feel right and have pains down your side please please get it checked out!! I knew I was I'll and got to a&e just in time!!

Bye for now
Ali
Xx

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5840347 Tue, 08 May 2012 17:35:42 GMT http://supportaih.websitetoolbox.com/post?id=5835533 Hugs Kathy
I should sign off as "yet another bump in the road".  I guess that since I have AIH I think that I shouldn't get anything else until I get this cured.  Life just doesn't work that way and I keep on forgetting that fact! 

Forum: AIH General ]]> http://supportaih.websitetoolbox.com/post?id=5835533 Tue, 08 May 2012 15:49:26 GMT http://supportaih.websitetoolbox.com/post?id=5835018

Forum: Non AIH/PBC chat ]]> http://supportaih.websitetoolbox.com/post?id=5835018 Tue, 08 May 2012 07:21:55 GMT