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Cyndi

Registered: 22/01/05
Posts: 149
Reply with quote  #1 

I was wondering if anyone has had a sharp, intense, piercing pain the in the liver area that hits fast and painful and then goes away. 

I had one today and have had a few over the last year.  The one today took my breath away and had me double over for a minute or so.

It doesn't happen all the time, but when it does it scares me.

My levels have been creeping up a bit, even with an increase in the prednisone.

Cyndi

 

 

MaryS

Junior Member
Registered: 21/01/05
Posts: 225
Reply with quote  #2 

Usually my liver pain is not intense but occasionally get a sharp, intense pain that scares me.  I understand how you feel. I have no idea and forget to tell my doctor.  I guess I need to write these kinds of things down and bring it with me to the doctor.

Cyndi

Registered: 22/01/05
Posts: 149
Reply with quote  #3 

Thanks Mary for your reply.  I know...I keep foretting things to ask the dr. too.  I don't see him very often. And that pain doesn't happen often enough for me to remember to bring it up at the appt.

I should get a little appt book that has enough room to jot down questions to ask the dr.

Cyndi

 

 

Tricia

Junior Member
Registered: 31/12/05
Posts: 325
Reply with quote  #4 

Cyndi,

I had an episode of severe pain over my liver. It was so severe that I went to the ER. It started and kept getting worse and worse. I paced my driveway for a while and it continued to keep intensifling. Finally I went to ER, MRI showed nothing. Still hurting next day. MRI repeated at docs next day---still nothing. I continued to hurt in lessening amounts for a couple of weeks. It was a long time (weeks, maybe months) before it was completely gone! No one ever figured out what it was. I get similar discomforts on and off now. Sometimes it lasts for several days and sometimes it lasts just and hour or two. It is always worse when I'm especially tired or sick.

 

This does not sound like what you experienced but may be a first cousin. If you do find out the cause, Please post so we can know.

Tricia

hheuring

Registered: 06/02/06
Posts: 3
Reply with quote  #5 

I was recently diagnosed with AIH in December 05.  I continue to experience pain in my liver and down the right side of my abdomen.  It can be so painful that it's too much for me to stand up and only feels better when I'm laying down.  Had a sonogram on Friday and am waiting today for the results.  I don't expect they'll find anything, I'm guessing this is just due to the liver inflammation. 

 

Has anyone had the same experience?  Does this ever get better?  I used to be so active and this has really altered what I can and can not do.  Any words of encouragement out there?

 

Heather


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Heather
WendyW

Registered: 09/09/05
Posts: 152
Reply with quote  #6 

Hi Heather

 

 

My liver pain started to decrease when I was put on Prednisolone - hope yours does too.  Sleep helped too and I didn't really do much at all in my first month since diagnosis.  Take it easy, look after yourself and post away.

 

Best wishes Wendy

AnnB

Moderator
Registered: 30/01/05
Posts: 2,191
Reply with quote  #7 

Heather

 

Think positive.

 

The liver is the energy creator for the body so when it goes wrong we get absolutely shattered.

 

Things will get better - but it will take some time I'm afraid (think a few months).

 

We all react to AIH differently - and we get it in different degrees. If it helps - I rush round like a mad thing - work very hard, go to the gym, run (very slowly). However I'd have been able to do all these things a lot sooner if I'd slowed up a bit when I was really ill..............

 

Take care

 

Ann

Bernie

Registered: 23/02/05
Posts: 13
Reply with quote  #8 

Hi Cyndi

 

I do not know if this will help ease your mind a little bit, but I can go back at least 15yrs to when I got this sharp pain in my liver it is very frightening and sometimes I would be doubled up with it, very scary, but I was only diagnosed with AIH 8yrs ago and yes I still get it but not so often but when it comes I still get scared. Do mention it to your doctors though it is best to keep them informed of what is going on.

 

Take Care

 

Bernie


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Cyndi

Registered: 22/01/05
Posts: 149
Reply with quote  #9 

Thanks Bernie for your reply.

I finally have my health insurance mess all fixed now, so I can get things going to make an appt with my liver specialist.  My old ins decided after 7 yrs that they won't cover my liver spec anymore.  So I switched to a new health ins that will allow me to see whomever I want.  I had another episode with the pain last night and it woke me up in the middle of the night.  I will definitely let the dr know about this and see what he has to say.  I'm not sure how soon I will be able to get an appt with him, but will be working on that sometime this week. 

Thanks again

Cyndi

 

 

Cyndi

Registered: 22/01/05
Posts: 149
Reply with quote  #10 

Well you guys are gonna love this one.

I saw my liver spec. yesterday. And while there I asked him about this sharp, intense pain in the liver area.

His response was....sounds like gas.  And he was serious.  And said it with a straight face.

And also my liver enzymes are still climbing and instead of him increasing the prednisone.  He reduced it. ?!?!?!?

Has anyone had their dr. do this.  I must have caught him on a bad day. I don't know. 

Cyndi

 

 

Bernie

Registered: 23/02/05
Posts: 13
Reply with quote  #11 

Hi Cyndi

 

I would have thought if you liver enzymes are still climbing he would increase your medication not reduce it even if he just increased it by 1mg to see if it makes a difference, as for the pain being just gas I don't think so, anyone else got an opinion on this I could be wrong but this pain we all seem to get is definitely connected to the AIH maybe we get it when we are having flare ups or our livers don't like what we are doing or eating at the time, but not gas Cyndi no way.

 

Bernie x


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Tricia

Junior Member
Registered: 31/12/05
Posts: 325
Reply with quote  #12 

Cyndi,

Definitely not gas. Sometimes these "specialists" amaze me at how dense they can be. Now how could he not know that it is a liver related pain esp when you bring it to his attention! It's not like he has to figure out that you are having liver pain. I really get upset when we have diffculty making our docs understand what we are trying to say! Hang in there. I, too, think it will get better as your liver calms down and starts functioning better. Can't imagine his rationale for decreasing your pred when your numbers are going up. Do you think that he got it backwards in his mind? That's something I would do. Oh, yeah, HE doesn't have AIH! Can't imagine why.

 

When do you go back? Is he keeping a close eye on your levels now? You might have to push a little to be sure he is AIH. (self or family!)

 

Try to force yourself to relax when the pain starts. Tensing will make it more intense. Hang in there. It does get better!

 

Tricia

peterw999

Registered: 09/02/06
Posts: 726
Reply with quote  #13 
I have a fairly difficult time localising liver pain ... I'm used to having gallstone pain if I eat somethign nasty. That's definately a sharp and intense pain .. lasting for 1-5 hours, usually late at night. It's also a pain taht hurt when you move a particular way.  Perhaps it's that?  Or perhaps i'm misinterpretting liver pain for gallbladder pain?




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AnnB

Moderator
Registered: 30/01/05
Posts: 2,191
Reply with quote  #14 

There's some earlier posts about the pain coming from the tiny muscles and tendons between the ribs. May be worth looking for those posts. because the liver doesn't have nerve endings so can't create pain in itself the docs tend to ignore the pain which is very frustrating.

 

On the meds issue - are your readings still within the normal range or are they going up beyond the normal range? If the latter then it is worth asking why he is reducing the meds but if everything is still within the normal range then the fluctuations could be what everyone goes through from day to day and I can see the logic of him reducing the meds.

 

Ann

Tricia

Junior Member
Registered: 31/12/05
Posts: 325
Reply with quote  #15 

My first gastro (that I loved) said basically what Ann said. The liver has no nerve endings so the pain is not technically "liver pain". He, too, said it was the muscles over the liver. I guess I call it liver pain because it is so very much in that area and accompanies AIH. My gastr also said that it was basically caused by the same process that causes AIH (if I understood him right and recall correctly). I think that is prob why it accompanies AIH and seems to follow the same time frame as AIH. However, it sure does feel like liver pain!

Tricia

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